Tuesday, February 19, 2013

Our CHD Journey: First Appointment


On January 26th, during a routine 19-week ultrasound, doctors discovered that our unborn baby boy had a serious congenital heart defect (CHD).

Being a type I diabetic, and already knowing that pregnancy involved these types of complications, I have always tried to mentally prepare myself to receive difficult news. With my first and second pregnancies, I always prayed before each appointment that God would perform a miracle, and that the doctors would tell me that the baby was fine. However, I feel that God has been preparing my heart especially for this moment.  From the beginning of this pregnancy, I felt I should be less "demanding" of God, and instead more accepting of his will, whatever it may be.  So I changed my prayer,  that God would help me see His grace even in difficult. When the doctors informed me that there was something wrong with the baby's heart, I was sad and worried but I wasn't really shocked. I guess I just never expected that God would take my prayer so literally.

The ultrasound began as usual; the technician took all the measurements and gathered all her information. She pointed out all the baby's details to my other two children, who had accompanied me to see "their" baby, and said that we were having a boy! She handed us a strip of pictures, and told us the doctor would be in as soon as she looked at the ultrasound pictures. As we waited for the doctor, I excitedly texted my husband (who was in the middle of a class), that we were having a boy! All the while, trying to wait patiently for the doctor to arrive and tell us the baby was healthy and happy! When the doctor arrived, she quickly told us that the baby looked perfect, except for one thing--she saw that there was a serious malformation of his heart. She quickly called the pediatric cardiologist, and he agreed to see me that same day.

Before leaving the appointment, the doctor said that I would need to make some "difficult choices" quickly, referring to abortion. I was caught off guard by this, and angered that abortion would even be suggested before they had even diagnosed the problem. I, quite frankly, told her that abortion would not be an option. In my mind, God had created this life inside me and must have a plan for it.  I had to allow him to carry that out, regardless of what it might be.

I texted my husband the news, and he immediately left his class and came to the hospital to be with me. But the kids had been at the hospital all morning, and were getting tired and impatient, so we decided it was better for everyone to take them home so they wouldn't have to wait through the next exam.

That afternoon, I was seen by the pediatric cardiologist, who conducted a fetal echocardiography to diagnose the CHD.  He was working with brand-new machines (I was only his second patient of the day), and was not as comfortable with them. Not to mention that the baby was not being very cooperative, lying in a position which made it difficult to examine his heart.

During the exam, the words "who am I" kept coming to my mind. I kept thinking how I was any more deserving of God's grace and mercy than anyone else, that I should escape these kinds of trials. This thought really helped keep me calm during the long exam as I lay on the bed looking at pictures of my baby's heart.

After a very long, 2 1/2 hour exam, the cardiologist was quite confident that he could make a correct diagnosis as congenitally corrected transposition of the great arteries (CC-TGA). However, because of the frustrations of the exam, he requested that I receive a second opinion, and referred me to another pediatric cardiologist at the Montreal Children's Hospital to confirm the condition.

As I got in my car to drive home, the tears started to flow. Yet strangely, at the same time, I felt an incredible sense of peace that God would bring me through this trial. The following weeks seemed like the longest of my life, while waiting for my second appointment  in Montreal. I felt so lost, not knowing what to think without a confirmed diagnosis or any real details about the defect. All the possibilities went through my mind, mostly the worst. The only thing that I knew I could do was to keep praying for peace.